![]() Dufault practices yoga in the backyard of her Northwest Side home. She was diagnosed with fibromyalgia a decade ago but pushed through the pain with hiking and other forms of movement.
Jorgensen Brooks Group Counselor Sales and Marketing Everready Glass Sales Reps Health Care CENTRAL ARIZONA COLLEGE DIRECTOR OF HEALTH INFORMATION MANAGEMENT Finance and Accounting Charles E. Gillman Company Accounting Specialist Health Care Dependable Health Services Physical Therapists Health Care Sierra Tucson Eating Disorders Program Coordinator Construction West-Press Printing Accent'I'm the exception,' she saysTucson, Arizona | Published: 02.10.2008
Not everyone with fibromyalgia can walk an 800-mile trail, as Sirena Dufault is planning next month, cautions Lynne Matallana, founder and president of the National Fibromyalgia Association.
"We don't encourage it as the norm," she says.
Even so, Matallana, who was diagnosed with fibromyalgia in 1995 and spent two years in bed, wound up riding a tandem bike three years ago from San Francisco to Los Angeles, covering 310 miles in eight days.
Like Dufault, Matallana also had been athletic before the illness struck. Dufault's onset came from an accident, Matallana's following surgery.
"It's trauma to the body," says Matallana.
Since she posted her Web site, Dufault has gotten a few negative comments from some suffering with fibromyalgia.
"I realize I'm the exception," she says. "I am trying to hike for the people who can't, to raise awareness about them. It's not about, 'Look what I can do.'"
Often dismissed by health professionals in earlier years, fibromyalgia, which Matallana describes as "pain amplification in the central nervous system," is now recognized by the Food and Drug Administration, the American Medical Association, the American College of Rheumatology and the National Institutes of Health.
"This illness affects people to different degrees," says Matallana. "We know things can be done, not just medication, but also exercise, eating right, getting enough sleep. It's wellness."
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